Today is Sunday, and while many go to church regularly or practice their own form of devotional and spiritualism today ( and many practice all week-long) I have not been doing this, and for this I am saddened. I … Continue reading
This blog has touched my heart. I’ve had to learn quickly, and by experiment, just what works with my son. It is hard because I can’t teach him the same as I did with my eldest. My youngest is his own person and there is just some things that he can’t do, or wont do, yet.
I love him with the same intensity as I do my eldest son and I know that at times it makes my eldest jealous because he sees it as, “My brother is acting bad and getting attention, why can’t I”. Kinda like I did when I was a child and my own brother, whom has a learning disability, got so much of my mother’s attention.
While it is hard for the parents of the child, it is just as hard for the siblings. They don’t fully comprehend as young children why their sibling gets so much attention when they are “acting badly”. Sometimes we do forget, It’s not just the parents that need a pat, but the siblings need hugs as well for being there with just as much love and acceptance, and occasionally helping care for, the special children that enter our lives and family to bless us.
Don’t get me wrong, every child is a blessing. Every child blesses us immeasurably. But not every parent is tested in the same way because each child is different, regardless of needs.
This blog reminded me of having to find a way to keep my child within the house, so he didn’t run down the street, or highway because one runs near the house. It mentions the problems with getting their son to eat certain foods, mine could easily live on ensure as well… and wont touch meat, only eats certain things (mainly dairy till we found out he had a dairy allergy and that started a new battle of finding something he could eat that mimicked his dairy fav’s). I’m lucky he eats some other stuff so that he’s growing OK and not unhealthy.
It reminds me of how he refuses to wear certain clothes.. He wont wear short-sleeved shirts, even in the dead of summer ( and we live in a desert with triple digits ). He sleeps maybe 4 hours a night, 5 if I’m lucky. He’s an ever-ready battery, going, going. going constantly. He has no fear, which causes me massive amounts of fear at times.
He is a handful, and I love him with all I am. He is my son and even with all of the things I have had to change to keep him safe, I wouldn’t change him.
Parents of children with autism will never tell you that raising their child is easy…it’s not! I joke around, look for the silver lining, take things in stride, and present a smiley face to the world. However, raising my son, Steven, has been, and continues to be, an extremely difficult parenting challenge.
Memories of how hard it has been flooded back to me when my hubby and I went away for a romantic weekend at our little cabin in the woods of New Hampshire. With the sub zero weather whirling around outside, we were sitting on the couch sipping hot chocolate with lots of tiny, melting marshmallows. (Okay, maybe HE had some Kailua in his, but mine really DID just have marshmallows!) As the heat rose up from the small grate on the floor, I was transported back to the time when we first purchased the cabin. Because Steven had…
View original post 406 more words
Today I had a very rude awakening. I had lain down for a nap while my children were with their father outside in the yard, if you can call it that. My yard is basically just dirt. Which my boys, being boys, love.
My eldest enjoys riding his bike all around it, the dogs can go anywhere with them because it’s, well, dirt. My youngest enjoys it because there are so many rocks to be found and packed into mommy’s house as precious treasures, I could do without this but it just makes him so happy when he shows me.
( I secretly take them back outside where they belong later 😉 Sneaky mommy. )
Anyway, today we got a visit from a social worker. YAY! Just the added stress I needed in my life.
It’s not like I’m not driving myself insane trying to keep up with an autistic child, my 5 yr old, that would make the Energizer Bunny look like a turtle.
It’s not like I’m not stressing myself out trying to be sure that my eldest has the best education I can provide for him, he’s home-schooled.
It’s not like I’m going constantly because I’m trying to be the best caregiver I can be for my mom, whom has terminal breast cancer and is bedridden. So, thanks to my nursing background. I can do a lot for her.
It’s not like there is so little stress in my life that I needed a little boost of adrenalin and a check to be sure my heart and tear-ducts still work.
And most of all, it’s not like my 9 yr. old is so care-free that he needed to become so worried about being taken away from his family that he started plotting where he could take his brother and him to hide so that if someone came to take them away they wouldn’t be here to be found.
Thank You, you mystery person, that just knew exactly what we needed at this time.
YES!!! I needed this stress added to my life at just this moment, and my kids, mainly my 9 yr old because my 5 yr old didn’t really comprehend what was going on, were over-joyed to be scared to tears.
Thank you to who ever decided that they would be kind enough to do this for us. It’s JUST what we needed.
In August my youngest son was diagnosed with a dairy allergy. I confess that driving away from the doctor’s office I broke down and had to bite my lip to gain control back while driving in that wonderful city traffic.
I’m not sure why I did, other than it was the latest “straw” on this camel’s back in a very large stack, but I basically lost it as images and questions flooded my mind about how I was going to basically have to find a way to simulate his daily diet, which consists of basically ALL dairy, with non-dairy substitutes.
No, seriously, this child LOVES dairy. He thrives on yogurt, cottage cheese, Mac & Cheese, grilled cheese sandwiches, cheese pizza, excreta… you get the picture.
So how do you deal with this??? Well, after gaining composure I turned to my mom and asked her “What do I do?” and my brother, in the back seat, reached up and squeezed my shoulder and said it would all be ok. Turns out he was right and my mother was right when she said, “Your smart and you’ll figure it out and find a way. This isn’t the end of the world and you do have options now that weren’t available before. They make dairy substitutes in everything and we’ll just find ones he’ll eat.” I have an awesome Mom.
And that’s what we did. I went and talked to my cousins whom have children, or they themselves, suffer from dairy allergies, and other food allergies, what they suggested. 🙂 AWESOME family I have. So many suggestions and helpful hints were given as well as sites to check out.
My son’s birthday was in December and I about freaked when I remembered… Ice cream is made with milk… WHAT DO I DO NOW????? I’ve tried all the other things… the frozen blended fruit, nope wont touch it… So I did searches and Hello 🙂 I now love Italian Ice, as does my dairy-allergy child 🙂 Can anyone think of a better excuse to go get a cup?
For Christmas my other son, sweetheart and professional TV ad shopper, convinced my Mom to get me a Desert Bullet. 😉 I’ve been playing with these recipes since I got it and boy do I love mine. The kids get a kick out of helping and occasionally I can get my youngest to eat his “ice-cream”. There are so many and they even have a blog with tons more 🙂
So while I sit and run through all the mess and stress of dealing with this new thing, and trying to convince my son’s father that he CAN NOT have dairy, and WHY it’s a BAD thing to keep doing, and that the extra cost of buying cheese made from rice milk outweighs the other stuff…. I’m thankful.
Why am I thankful? Because I have an awesome support base to fall back on and I know that no matter what, I can talk to them and they will have ideas or thoughts that can help me get through it, and remind me that orange is not my color.
( I started this back in August 2013 but couldn’t finish it, then forgot about it until now. Don’t you just love how life keeps you busy? 😉 )